Mind of my Stroked Brain

I have had a bascilar stroke 2 and half years ago. I'm bed ridden and no movement on right side and very limited movement on the left. So in diaper. I was on catheter for first 5 months. Later on, moved home and catheter was not easy to manage. For a few days, it was just diaper with change every 2-3 hours. In a little while, I realised I could feel the pressure in the bladder and I could ring a bell to indicate I have to go so the nurses could give urine can. So the change every few hours stopped. Although I could feel the need to go, there was no ability to control. I usually had 20 seconds from the feeling to passing. The feeling came every 2-3 hours. And about 400ml each time (i am on peg feeds so only on fluids also). There has been no difficulty passing and no urinary infections till date. However, over time, the frequency has increased and I need to go every 1.5- 2 hours and tolerance has reduced and the nurses have to react faster. Off late, maybe 2-3 weeks, it has become d

I ve hesitated to send this note. Worried its not dignified (for the reader, i have none anymore). But it is a big part of my everyday life and struggle, so thought I'd share it anyway. Almost all stroke survivors face some degree of incontinence after. I'm no exception. The degree is different... From the time of the stroke, i have been unable to pass motion. My wife has tried various permutations and combinations of foods, fibers, ghee not to mention strong laxatives, etc. nothing has helped. I have to rely on being administered enema every 3 - 4 days. The chemical in the enema causes involuntary movement and I'm relieved. For more than a year, it was so bad,  the Enema would not even trigger involuntary movements and was no use. Every 2 - 3 days, they had to do, what is referred to as PR in nursing circles. Basically put their fingers in deep, and pull out what they can. It's very painful, but even more uncomfortable otherwise. I am glad enema is working now, so i ca